Weekend Update

It was supposed to be a quiet weekend with just one "scheduled" event. However, with New Years coming up, so many people brought food and stopped by that it was so very busy. Susan and I appreciate all the good will. Note that going forward, Wendy has set up a spreadsheet so that meals will be more-evenly spaced out:

https://docs.google.com/spreadsheets/d/1_SWZ1UGyAWCum0_2jOakDXkMQ1CzzgvMWgHa1y-G07I/edit#gid=0

Thanks for all your help.

I think that the medication dosing is at a good level now, but it does take some tinkering, especially the morphine and oxygen. I upped the morphine level this weekend, and Susan's speech is a bit slurred and she is having a difficult time, for example, navigating Instacart, but, again, everything is sharp internally. Though exhausting, she said she was "oddly" happy to connect with so many people, virtually and in person. The conflict, of course, exists because of the reason for these more-intense connections.

It is hard notice the decline from day to day. Someone who doesn't see Susan continuously would probably have a better sense of it than me. She seems to be eating more and drinking enough, but I do notice that she is physically weaker and balance is getting harder when standing for certain things (she is now not ever not holding onto something or someone). 

Decline is more-easily measured with distinct milestones (such as deciding to use the commode instead of going all the way to the bathroom), and there haven't been any recently. It could be a combination of things including not having the intense ozone intervention, something that Susan is so relieved about. It feels like she has months, but I am prepared for less.

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