Hospice, Part III

 Two hospice events today:

  • A visit from Susan's social worker, Tasie.
  • A visit from Susan's nurse, Eithne.
Tasie was very matter-of-fact and went over many of the logistics including paperwork that needed to be filled out (resuscitation wishes, donation of body to UCSF). By the Bay provides an extensive handbook including a sober EOL description that, while difficult to read, was very important with respect to what to expect especially close family interaction at the end. Being prepared helps everyone involved.

Eithne was very warm and empathetic while at the same time very efficient in going over medication, making suggestions, and administering care. For example, she suggested upping the morphine dose for Susan's shortness of breath a certain way and described various drug interactions from experience. I believe Susan is now breathing more easily with the increased dose (not anywhere near dangerous as the requirements for addressing shortness of breath are way below that for pain which Susan does not have). Her appetite has increased very slightly, but I can tell she continues to lose muscle mass and weight.

Though important, the two visits were exhausting for Susan. We are all too aware of the precious time we have now with our kids who have been here with us as we support each other in this time. It is bittersweet that this is what forces us together to make us aware of what we have, family especially but friendships for sure, and there is that combination of joy and sadness that is an all-to-familiar consistent cancer theme that many of you understand.  I am still hopeful and optimistic, but not delusional. We greatly appreciate and feel all the positive vibes you are sending Susan's way. Please keep them coming.

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